Monday, April 23, 2012

My Jude has come home!!!

I will not post much tonight but I wanted to share that my Jude is home. He came home on the 17th almost a week ago. Chris has been busy working at a temporary job and I have been busy with my son at home :) we will post more soon! thank you all for all your encouragement over these last few months. We still have a long way to go but Jude being home is such an amazing amazing blessing! I wanted to share a song that I am constantly reminded of, brings me peace to know God...


Take courage my soul and let us journey on,
though the night is dark and I'm still far from home;
praise be to God, the morning light appears

he storm is passing over (Lord)
The storm is passing over
The storm is passing over, hallelujah

Sunday, April 8, 2012

Preparing a room

     Last time I was in Boise I did a communion message for our church there.  In it, I talked about John 14 verses 2 through 4 in which Jesus said " My Father’s house has many rooms; if that were not so, would I have told you that I am going there to prepare a place for you?  And if I go and prepare a place for you, I will come back and take you to be with me that you also may be where I am.  You know the way to the place where I am going.”  In this passage Jesus is talking about Heaven.  Heaven is our intended home where Jesus has promised a room for those who are faithful.  Earth is not our home.  We try desperately to make Earth as comfortable as possible with things we buy, the places we live, food we consume, and friends and family we surround ourselves with.  Even the person with the "best" of these is not home here on Earth..  Earth is not where we are meant to stay.  In the same way, the NICU is not Jude's home.  He has a crib, clothes, toys,  food, and family yet, it is not his home.  It's the NICU.  No matter how much time we spend with Jude in the NICU or how many blankets, clothes, and stuffed animals we bring with us it is not his home.  Jude's home is with his mom and dad at his grandparent's house (for now, anyway).  And much like Jesus has done in Heaven, we are preparing a room for Jude.  In fact, we've spent hours and hours painting, assembling, and organizing his nursery.  It's well worth it though because he is coming home on April 17th.
     About two weeks ago we had a meeting with our medical team at the hospital to talk about Jude's discharge date.  We discusses his progress and how medically, he was able to be discharged as early as April 3rd.  This was quite a shock as we had always talked about the middle of May as our discharge time.  It caught most of the staff by surprise too, as they, like Tracy and I, were not prepared.  We were not prepared with a finished nursery yet and the hospital had yet to begin arrangements for Jude's home nurses or medical equipment.  So, we all agreed that the April 17th would give us all ample time to prepare for Jude coming home.
     It will be quite an ordeal for Jude to make it home.  We have met with a local medical supply company and have gotten most of Jude's equipment already.  We are setting up two nurseries: one in his bedroom, and one in the living room.  This is because Jude will still be fairly immobile, remaining mostly in his crib, and setting a nursery up in the living room during the daytime allows for us to be around Jude without having to spend all of our days in the upstairs nursery.  Jude will be coming home with his respirator, a suctioning system, a blood oxygen monitor, and his feeding pump (these are only his large, space-consuming, pieces of equipment.  There is loads of other supplies that Jude uses daily.)  We also are making changes to the home in preparation for his arrival as well.  In order to ensure all  the equipment is getting ample power supply, grandpa is calling in the electrician to run specific circuits to the walls where the equipment will be.
     We have also began interviewing home nurses for Jude.  He will get 24 hour nursing for the first two weeks and then will be weened down to twenty hours a day and so on and so forth until eventually over time, we will only have one nurse for twelve hours a day or so.  We have been pleased with the applicants thus far and feel good about having the nurses there.  We've become fairly accustomed to being around nurses all the time.
     Throughout all of this hullabaloo the biggest thing we are feeling now is excitement.  Excitement to finally bring our baby home from the hospital.  I imagine that Jesus feels this kind of excitement to bring His Father's children home to the house where he has prepared their room.  Of course it's not exactly the same but we are excited to bring our baby home to the room we have been preparing for him.

To God be the Glory,

Chris